Sunday, January 31, 2010
Ok so its time to begin the journey. We are starting to get ready for our first trip to St. Jude. Reading the St. Jude web site for the list of things to bring, making sure the laundry is done, making sure that Kaite is packed to go stay with Leslie and Eric for an undetermined amount of time, making sure Jacob and I have what we need to go for an undetermined amount of time(Really thinking I may wait to talk to the Travel Office at St. Jude before we start packing.), paperwork, medical information, phone numbers, and everything else. Wow its really a lot to take in and pretty overwhelming. I took Jacob to get some slippers and new socks, the boy is really rough on socks, HAHAHA. Well just wanted to let everyone know what is going on with us right now. I will post when we know the details of our trip tomorrow. Sounds like we have our own travel guide, HAHAHA, sure wish it was to Cancun or something. : )
Thursday, January 28, 2010
What does a mother say to that??????? How can you not react to a doctor entering a room in his office, looking like the world has ended? Apologizing to you and your 14 year old child that the results of his MRI are not good. Its much worse than he expected. This is a mental picture that is going to be permanently etched in my brain and I so wish that it was something else, something good, something happy. I have a beating heart inside my chest right now that is cracked in a million places. I have so much anger, hatred, sadness, etc. I really just do not know how to function. The one thing I do know is that I just keep telling my son that everything will be okay and we can get through this like we have in the past with other medical issues.( I will update more later about past medical issues.) I have tons of people praying and offering to help in any way we need. I am so very thankful to everyone, but I still am really trying to come to grips with the fact my son has a very rare cancer and the treatment options are few. The only thing I can say right now is.....I don't know!! I just don't know!!